"We found out she has a rare disease called PKAN-2 when she was 3 years old. There is no cure for it, and as time progresses it only gets worse. She tends to fall a lot, her speech is very limited and she can't be formally schooled -- but the one thing that has been constant in her life is her smile. You know special children are considered a taboo in our society -- they're swept under the carpet and hidden but what is their fault? This condition is so rare and random, that it could happen to anyone and all we can do is add quality to her time here.
The funny part is, we build up our condition in her head and feel she's special -- but she is blissfully unaware and happy all the time. She loves to color, she paints, she tap dances and loves to be out in the open. Believe me there are so many things we learn from her every single day. She has so much to be frustrated about -- she often loses balance and falls down pretty badly, but apart from the 2 minutes after, where she cries, she has no form of self pity -- she's back and walking again. She finds it difficult to communicate - like just the other day she wanted to go to the park but it took us really long to understand her, but she was still so patient and full of appreciation when we took her there.
We know that it's rare for kids with this condition to even make it past their graduation, but like I said that's us adults overthinking. For her, her life is perfect, this world is perfect and with each passing day, she falls in love with something new -- whether it's a new color, a new song or a new person. And that's something we could all learn to do from her...live for today, as happily and as enthusiastically as we possibly can."
Humans of Bombay, Fb
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